Yann Joly, PhD, AdE

 

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Yann Joly, Ph.D. (DCL), Ad.E. is a Lawyer Emeritus from the Quebec Bar, an Associate Professor and the Research Director of the Centre of Genomics and Policies (CGP), at the Faculty of Medicine, Department of Human Genetics at McGill University. He is cross-appointed at the Biomedical Ethics Unit. Prof. Joly is a research fellow from the Fonds de recherche du Québec- Santé (FRQS) and an associate researcher at the Centre de recherche en droit public (Université de Montréal). He is the Data Access Officer of the International Cancer Genome Consortium (ICGC).

 

As a representative of the Global Alliance for Genomics and Health (GA4GH), he is the Chair of the UNESCO and Human Variome Project Standards Group. His research activities lie at the interface of the fields of intellectual property, health law (biotechnology and other emerging health technologies) and bioethics. In recent years,  Prof. Joly has served as a legal advisor on several ethics committees in the public and private sectors. In 2012, He received the Quebec Bar Award of Merit (Innovation) for his work on the right to privacy in the biomedical field.